Saw the radiation oncologist this morning. (Two hour drive to NoVA, whee.) More info when I get home and have a keyboard instead of phone, but: I adore him, he's given me tons to research, he's willing to schedule me now but also says it's not house on fire urgent since it's not proceeding quickly enough to be an urgent situation (but he didn't downplay it either) and did I mention I adore him?
I feel very much better now that I know I have him, and will feel even better after seeing Mom's guy on the 30th.
Dupuytren's specialist in NJ says yes, see him, but also schedule with the radiation oncologist ASAP and they'll coordinate. And, good news, I had overlooked the clinic in northern Virginia that has a radiation oncologist who specializes in Dupuytren's! It's even in-network for my insurance. (Not like that would stop me: for the privilege of money and not having to worry about whether I can afford the best treatment possible, dear Lord, I am daily thankful. Now make it so everyone else can say the same, amen.) Dr P in NJ said he knows Dr B in VA very well, and they're used to coordinating, so I called Dr B's office and am scheduled for a consult with him on 19 May to go with my new-patient intake with Dr P on 30 May.
Having now done everything I can do for at least the next 11 days, I shall now proceed to ignore the fuck out of it until then.
As predicted, my hand guy's PA diagnosed the Dupuytren's and tried to tell me that there was nothing they could do until the tendons start contracting. And then was very visibly baffled when I said that all I wanted was the diagnosis because the next stop I'm heading to needs the diagnosis first and my mom's specialist is out of network for my insurance, so can you please just write down something that says I've got Dupuytren's so I can go have my hands nuked? (He was, in fact, so baffled that he went to go call my regular hand guy, who apparently said I was the first person he'd ever had mention that treatment in his entire career and I should send them my records so he can figure out if he should update his treatment protocol. Problem being, of course, that there isn't a clinic in all of MD that does radiotherapy for Dupuytren's yet, so.)
Appointment with Mom's specialist is at the end of the month, but the scheduler told me to email the doc directly and ask what he wants me to do since I'd be coming from so far, I've got the diagnosis, and he knows Mom's case (ie, if he wants me to go straight to scheduling with the clinic).
I'm still vacillating wildly between being totally okay about this (caught it early! know the treatments! can afford to do it even if it's out of network/if my insurance won't cover it! not losing time by believing doctors who aren't up on the bleeding-edge research!) and being totally fucking freaked out (my HANDS, if this doesn't work I will slowly lose my entire set of professional, social, and leisure activities, because I've tried dictation and it does not work for me, arrgh). The AHCA fuckery this week is not helping.